COSCAM
Contributing to feedback presentations from participating Groups
Due to their abnormal appearance, capillary malformations (CMs) often cause a reduced quality of life. Currently, there is limited evidence on the best available treatment strategies, because of an absence of uniform outcome measures in therapeutic trials. A Core Outcome Set (COS) enables standardized reporting of trial outcomes, which consequently facilitates comparison of treatment results. Hence, CM patients can hopefully be better informed about the best treatment strategy in the future.
The aim of the COSCAM project is to develop a Core Outcome Set (COS) for clinical research on CMs. In the current study we focused on the development of a Core outcome Domain Set (CDS). COSCAM will present the methods for the CDS development and the results of this phase of their project.
Speaker: Ginger Beau Langbroek, Department of Surgery, Amsterdam University Medical Center (UMC) location AMC, Amsterdam.
Ginger Beau Langbroek, MD
Ginger Beau Langbroek is a PhD Candidate at the Department of Surgery and Plastic, Reconstructive and Hand Surgery at the Amsterdam University Medical Centers location AMC in Amsterdam, The Netherlands. The subject of her thesis is vascular malformations and shared decision-making. She obtained her Bachelor Liberal Arts and Sciences at University College Roosevelt in Middelburg, The Netherlands, after which she continued her Medical Master at the University of Amsterdam. Following her graduation, she worked as a resident-not-in-training at the Department of Surgery at the Maasstad Hospital in Rotterdam.
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This meeting is co-organised and partly funded by the COST Action COMFA CA18227, supported by COST (European Cooperation in Science and Technology)
COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation.